The mission of Compassionate Access for Epilepsy Texas (C.A.F.E. Texas) is to support public policy that helps foster effective treatment, research, and cures for epilepsy. C.A.F.E. Texas is working to provide a voice for many in Texas with epilepsy who face challenges due to uncontrolled seizures where there are no treatment options. C.A.F.E. Texas supports the limited use of cannabidiol oil in Texas for the treatment of severe epilepsy as directed and guided by physicians.
C.A.F.E Texas is a project of the Epilepsy Foundation Texas affiliates. This initiative was launched to support policy changes that will benefit patients and families, especially families with small children who have catastrophic forms of epilepsy. C.A.F.E. Texas brings together Texans and nonprofit organizations that support the compassionate access and physician directed medical use of cannabidiol (CBD), a non-psychoactive component of cannabis, to treat epilepsy. Some epilepsy patients and especially very young children afflicted with life threatening forms of epilepsy benefit from the compassionate and medically directed use of CBD. CBD oil has shown effectiveness in animal studies, and patients in states where CBD oil is legal have reported positive results.
Despite available treatments approximately one-third of people living with epilepsy suffer from uncontrolled or intractable seizures. Uncontrolled seizures can lead to disability, injury, and even death. People living with refractory seizures have reported beneficial effects and reduced seizure activity with the use of CBD oil. Access to CBD would be limited to cases where traditional treatment options have been unsuccessful.
Texans, especially critically ill children who are at risk of death or brain damage due to seizures, should have access to this promising treatment option, especially if the patient, the family and the doctor led medical team believe that this treatment may limit the possibility of severe consequences including death and major disability. Existing treatments have real side-effects, both known and unknown, and, just as there are risks with any treatment, every day without seizure control is a risk to life. With every seizure the opportunity to grow, learn and live is jeopardized.
Support C.A.F.E. Texas
Want more information on the flurry of activity surrounding the use of cannabidiol (CBD) to treat epilepsy and seizures? Below are links for additional information.
C.A.F.E. Texas Official Website
Epilepsy Foundation’s Medical Marijuana Statement
Join the Epilepsy Foundation’s general advocacy List
Join the C.A.F.E. Texas mailing list
*Clinics will be restablished in Eagle Pass, Del Rio, and Uvalde in 2014.
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