EFCST Calendar

  • 23 Apr
    06:30 PM to 08:00 PM
  • 29 Apr
    01:30 PM to 03:00 PM
  • 13 May
    06:30 PM to 08:00 PM
  • 20 May
    05:30 PM to 07:00 PM
  • 20 May
    06:30 PM to 08:30 PM
  • 27 May
    01:30 PM to 03:00 PM
  • 28 May
    06:30 PM to 08:00 PM
  • 09 Jun
    12:00 AM to 12:00 AM
  • 10 Jun
    06:30 PM to 08:00 PM
  • 17 Jun
    05:30 PM to 07:00 PM
  • 17 Jun
    06:30 PM to 08:30 PM
  • 24 Jun
    01:30 PM to 03:00 PM
  • 25 Jun
    06:30 PM to 08:00 PM
  • 08 Jul
    06:30 PM to 08:00 PM
  • 15 Jul
    05:30 PM to 07:00 PM
  • 15 Jul
    06:30 PM to 08:30 PM
23 Apr 29 Apr
13 May 20 May
20 May 27 May
28 May 14 Jun
10 Jun 17 Jun
17 Jun 24 Jun
25 Jun 08 Jul
15 Jul 15 Jul

 

 Teens Speak Up!

Sen-Ted-Cruz-TX-500

Even the snow couldn’t stop Texas advocates from going to Capitol Hill to share stories about living with epilepsy.  After a day and half of training, Teen Speak Up! participants and advocates put on purple scarves and headed to Capitol Hill for meetings with Senators and Representatives! 

 

 

Rep-Vela--Madison-5001EFCST Teen Madison Breeden, Brownsville, met with Congressman Filemon Vela (D-TX-34) to tell her story of living with epilepsy.  Congressman Vela has a staff member recently diagnosed with epilepsy, both the Congressman and the staffer had many questions about epilepsy.  Congressman Vela was so impressed with Madison and her story, that he invited her to the House Floor to join him in a vote. 

 

 

Speak Up and Speak Out! 
Congress needs to make epilepsy a higher priority.

 

The most prominent message delivered was the recent decrease in National Institute of Health funding.  Less than ½ of 1% is spent on epilepsy research.  The message of making epilepsy a higher priority resonated through Capitol Hill.  Additionally advocates from across the country successfully delivered the message asking Congress to require the DEA to schedule new, FDA-approved medicines within 45 days.  The day after Hill visits new legislation was introduced (Improving Regulatory Transparency for New Medical Therapies Act’’ H.R. 4299) information about this resolution is available online at http://bit.ly/HR-4299.  All of the legislative messages delivered by advocates on Capitol Hill are also available online at http://bit.ly/epilepsymessage.


WhiteHouse Petition

The Epilepsy Foundation has launched a White House petition asking for a lower DEA Schedule for marijuana for medical research.  100,000 signatures are needed by April 19 to receive an official response from the White House.  You can help by signing the petition and helping to spread awareness of the petition.  You can view and sign the petition at: http://bit.ly/epilepsywhitehouse.  The Epilepsy Foundation’s Position and Commentary about Medical Marijuana is available online at http://bit.ly/cbdepilepsy.