The Veterans Outreach Program is an awareness campaign aimed at Veterans returning from Iraq and Afghanistan who may have sustained a Traumatic Brain Injury. The Veterans Outreach Program (VOP) is a systematic approach to advocating, and educating Veterans and their families on the correlations between Traumatic Brain Injury (TBI) and Post Traumatic Epilepsy. In addition the VOP willprovide supportive services to aide in improved access to medical and psychological health benefits through collaborative partnerships.
Studies show that 19.5% of U.S. military personnel returning from Iraq and Afghanistan have reported possible Traumatic Brain Injuries (TBI). TBI has now been identified as a “signature injury of the global war on terror”. The long-term effects of head injuries create a heightened risk of post-traumatic conditions, including epilepsy. The incidence of Post Traumatic Epilepsy in active duty soldiers diagnosed with TBI is as high as 53%. In addition it has been shown that countless hours of paperwork and up to 2 week transition time prior to separation from the military often leads to unintentional overlooked vital information provided to the soldier. during this transition. This could potentially lead to difficulties obtaining future benefits should long term effects become apparent.This has become an enormous concern among Veteran advocates and physicians.
Trainings will be provided to address the educational needs of Veterans and their families. In addition to trainings each participant will have the opportunity to complete the TBI Screening Tool. Trainings will include the following topics:
“This program was made possible by a grant from the Epilepsy Foundation and the Centers for Disease Control and Prevention (CDC) under grant number U58 DP000606-04. Its contents do not necessarily represent the official views of CDC.”
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The Clinical Care section of this web site is intended to provide information to physicians and health care professionals about the current treatment and understanding of the epilepsies. Laypeople who read this information are warned against making any changes in their treatment based upon the information here without consulting their personal physician. While the Foundation has made every effort to ensure the accuracy of this information, medical knowledge changes quickly, and changes may have occurred since this information was last reviewed by professionals. Information may also not be complete; the practitioner is therefore urged to continually seek up-to-date information, and may contact the Epilepsy Foundation for assistance in doing so. Some treatments recommended in this section of the website, while in line with generally accepted best medical practice, may not be approved by the U.S. Food and Drug Administration for the described uses. Consult the Physicians' Desk Reference and product manufacturer for approved uses and additional information.
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What personally identifiable information does the foundation collect from me?
The Epilepsy Foundation respects the personal privacy of the visitors to our website. We believe keeping your information private and in a secure environment is very important. When you browse our website, you do so anonymously. Personal information is not collected, unless you voluntarily provide us with that information as described below. We will not share with third parties your name, street address, telephone number or e-mail address without your consent. We do not sell or rent your personal information. We will not deliver target advertisements from others to you. We provide no mechanism for an advertiser to reach you, unless you sign up directly with an advertiser or outside vendor.
In order for the epilepsyfoundation.org website to improve its performance and design and to provide you with better services, we track the usage of our website through information taken from our server log files. The type of information collected is basic statistical data, such as channels and sections viewed, time of access and amount of time, search phrases used to reach the Foundation's site, and browser type. This information is anonymous, and is collected in the aggregate; it will not personally identify you in any way, and we cannot get back to you the user through this data. We use this aggregated information in order to learn what are the most popular sections of our site, for general promotional purposes and for making decisions about the future strategy and direction of the website. The aggregated information may also be shared with third parties to promote Epilepsy Foundation services and the website, or to add to general knowledge concerning the public's need for epilepsy education and treatment services.
What happens when I sign up with the Foundation online?
You voluntarily provide us with personal information when you choose to become a member, make a donation, join our Speak Up Speak Out grassroots network or Newsroom, join one of our e-Communities, subscribe to one of our e-newsletters, participate in a research campaign and when you purchase a product from our catalog. The information we collect through these transactions includes such things as your name, address, phone number, email address and, when you make a financial transaction, your credit card number. This allows the Foundation to send you messages and to share information with you that we think you may find useful. We study our users' demographics, interests and behavior based on this information voluntarily provided for a variety of reasons, including to have better information on the needs of people with epilepsy and how to improve our services.
What is a cookie and how does the Foundation use them?
You may choose to set the Internet properties of your computer so that you are alerted each time a cookie is being stored on your computer or you may choose to prohibit the collection of cookies all together. In addition, you may delete cookies that have already been stored on your hard drive. If you do prohibit the collection of cookies, understand that you will need to re-enter your email and other information each time you go to the portion of our website which requires the input of identifying information.
How do I change my personal information or stop receiving online information from the Foundation?
If you need to change your personal information, you may do so yourself at any time by simply going to the part of the site where you signed up for the e-newsletter, e-community, or purchased items by entering the corrected information. If you decide that you no longer want to be a part of an e-community, or receive marketing or other information from the Foundation sent to your online email address, you may unsubscribe by updating your profile in the e-communities area to deselect subscriptions to the e-newsletters or the line that asks for additional information. If you are a member of the Foundation and would like to update your records, please contact the Membership department at the Foundation by telephone or letter.
How does the Foundation protect my confidential information?
If you have shared with us your credit card number in order to purchase an item from our marketplace or to make a donation to the Foundation, your credit card number is stored on a secure server and is protected by firewalls. The Foundation uses computer encrypted technology to protect your information and this information is kept confidential. The Foundation sometimes contracts with outside vendors and business partners to fulfill customer services and hosting services on the website. When we do so, we enter into confidentiality and non-disclosure agreements with all vendors stating that they will hold information received through our site confidential and will not sell or share user information to any third party or use the information for their own personal use. A very limited number of the staff of the Epilepsy Foundation has secure access to data. We hold our employees accountable for our privacy principles and each employee is personally responsible for maintaining customer confidence in the company.
The Foundation may disclose information to law enforcement and other authorities in the rare case when there is reason to believe that disclosure is necessary to identify, contact or bring legal action against someone who may be causing injury to or interference with (either intentionally or unintentionally) the Epilepsy Foundation's rights or property, other Foundation's users or anyone else that could be harmed by such activities. We may disclose or access account information when we believe in good faith that the law requires it.
How are children who use the Foundation's website protected?
The Foundation is concerned about the safety of minors who use the Internet. We want you and your family to feel secure when visiting our site. We host a Teen Chat Room, in which the only required information collected to participate is a nickname. The entry of profile information is voluntary and you may block the profile from being seen by other users. Before participating in the Chat Room, we strongly recommend you review the legal restrictions governing the chat room located on the Teen Chat Room Page. Children should always ask a parent for permission before sending personal information to anyone online.
Children under 13:
Do not send us any information about yourself or your family if you are under age 13 - including information like your name, address or email address - unless you have asked your parents for permission to do so. The Foundation will not knowingly request personal identifying information from children under the age of 13 without parental consent. If we learn that we have personal information from a child under 13, we will delete that information from our database as soon as possible.
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